Over the summer, I took a lot of long bike rides. One feature of going 20mph — OK, it was more like 17 — instead of 50 is that you notice things that you’d otherwise miss. You also notice which roads are smooth vs. perenially under construction or have so many potholes that you’re guaranteed to get a pinch flat. After so many miles of trailing, I could write a blog on this topic alone.
One thing I noticed, for the second time, was the sheer number of facilities for seniors in the area.
The first time was while my father was alive. He lived here for 4 years in a community that during his tenure had 3 different owners. It went from simply being called Farm Pond, to Emeritus Senior Living, to Brookdale Cushing Park. This is a community with a feature euphemistically called “Aging in Place”, which I know now is a highbrow way of saying that they provide both independent living and assisting living apartments. It’s a benefit when you have to move suddenly as we did – but assisted living is a totally different experience from its independent living counterpart.
Farm-Pond-Emeritus-Brookdale, however, did not have a “skilled nursing” section. This is something less than a hospital room, but not by much. I saw enough of those during his hospital recovery stints in various rehab centers. The rooms are spartan and full of medical gear. It smells like disinfectant. The lighting is industrial. There often are a lot of people shouting because ownership typically keeps nurse to patient staff ratios high to manage labor expenses, so the residents do what they can to get more attention. That is: they yell.
I would pass by places that offered skilled nursing and hope never to walk in the lobby with his belongings. Not long before he passed away, I took him to a rehab center (skilled nursing plus exercise facilities) as part of what we hoped would be a path back to this independent living apartment. It’s close to the gym where I now belong, and although it’s been over a year, passing by the Salmon Health and Rehabilitation Center still takes me back to that final week.
Passing by a community like my dad’s, I would wonder about their fee structure, whether or not they had a waiting list, whether they had vacancies, and if so, why. Quickly cycling turning this thought sequence became second-nature to me, even zipping past at 50mph or more, and nearly anywhere I went in America.
There also is an Alzheimer’s center not far from my house that I would pass several times a week, and die a little each time. I knew there was almost no chance we would end up there. Didn’t matter.
Not every place is like that. Near the Natick “Collection” (I think when you add a Nordstrom’s, you can’t call it a mall anymore) is a orthopedic office where we had a check-up after my father broke his hip. It was healing so well that the doctor didn’t quite believe it. It was a nice surprise during a process that has fewer and fewer as time goes on.
Now that a year has passed, seeing facilities no longer fills me with dread or racing thoughts. Mark Twain is noted for having said that “I’ve had a lot of worries in my life, most of which never happened.” Most of mine never happened either. My dad lived in one facility for almost all of his time here, and he was happy there. And yet – I still notice them anyway.
I had an unexpected night to myself for dinner the other night, so I hit Legal’s.
I haven’t been there much in the past year; for one, the average age at the location in Framingham is about 65, and that’s including the young families who somehow think that it’s a good idea to bring their squirmy 2 year-olds to an upscale casual seafood restaurant (pro tip: it’s not). My 5 Guys business partner loves to go to Ken’s, which is a steakhouse not far from Legal’s that I think he used to frequent because they would serve him and his underage friends. That was 40 years ago now and I don’t think they have gained any new customers in 40 years. The place is terrible. But I digress.
Legal’s was my father’s favorite restaurant when he lived here. We went there for his birthdays, for my kids’ birthdays, for my birthday, for Washington’s birthday. You name it. I used it as a motivator when he was doing physical therapy in New Jersey after his near-death experience with C-Diff and he wanted to quit. So many times my brother and I convinced him not to quit. We sat and ate chowder when he finally made it up here, weakened and still sick, but alive. It was our place and for many months, it hurt too much to consider eating there again.
Recently, I have been thinking of him a lot. It’s been about a year since he passed away, which I’m told is a milestone. I have an unusually good memory for dates, and this summer I relived the sequence last summer where things really fell apart. This was the Tuesday that I took him to the doctor who hospitalized. This was the triathlon I did last year while he was in the assisted living apartment for the first time begging me to let him go back to his old place. This is where I was standing when I got the call from the hospital that he was back, and barely responsive. This was the time of day when I said the last thing to him I ever would, which is asking him if he was thirsty. He was. He didn’t suffer much until the end and it was hard to watch. This is the time last year that I was in Rome and my brother had called to tell me he was gone.
Now though, I can feel that the memories are there, but the debilitating impact doesn’t accompany them. It’s like they exist on their own, and I can choose how I want to pay attention to them. I am starting to come to terms with what all the years as a caregiver meant. Sophie, who suffered a bad concussion about a week before he died, is finally healing. She is a brave and amazing kid, and her positive attitude has been inspirational, but all the same, it hurts to watch your child suffer. We didn’t know then how hard her year would be, and ours with it. It was a hard year. It is finally passing.
A few times in the past few weeks, I have caught myself recently feeling strangely at peace. I like it. It says something that this sensation unfamiliar enough that I noticed it.
So although I drive past Legal’s regularly on Route 9 (just before passing Ken’s on my right), it felt different recently. To celebrate that, I decided to treat myself to dinner there next time I had the chance.
In case you’re wondering, I had a Jack’s Abby Hoponius Union with my cioppino; this is one of the beers with which I would stock my father’s fridge in the days that he insisted that I keep beer there. As for the cioppino, I can report this: it tastes good again.
Hello remaining Sandwiched Man readers! I’m actually no longer a member of the sandwich generation, but despite that, I have a few more entries saved up that I’m going to try to extract. It’s been almost a year since my father passed away and more than a few times, something small will happen (a “small moment”, as my kids learned in elementary school), and I’ll think to myself that it would have made a great blog post. Then on more and more occasions recently, I’ve wondered why it should matter, that a good story is a good story, and that I might as well it.
I’ve had on my list of “things I’d like to do for myself” for some time now to restart writing. I usually wrote as an outlet or if something particularly struck me as unusual and interesting. So, since today would have been my dad’s 94th birthday, I figure it’s as good a day as any to revive this.
It is a strange day. For one, Google and Facebook are working overtime to remind me that it’s his birthday today. Why did we sign him up for Facebook again? I’m sure it seemed like a good idea at the time, and like a lot of those things we started on his behalf, maybe it wasn’t.
I’m also reminded of the dinners we had on his birthday, the cakes I bought, the cards my kids used to make, usually in a mad scramble before we shlepped over to Framingham to visit him. This picture is from his birthday lunch last year at Legal Seafoods. He told a rambling and inappropriate story and it was obvious already that he was changing for the worse. He had about 60 days to go.
By now, I’ve gotten used to not getting his strange political emails; today though, I thought about those more than usual. Whatever you think of Trump, reading about him certainly would have kept my father busy. At least he didn’t have to live to see what became (or didn’t) of Megyn Kelly.
More later – mostly I wanted to get something down in writing, and just start. Sometimes the hardest thing in any endeavor is to do that: start. Or restart. My father always liked doing exactly that. So, it seems like a fitting birthday tribute to do it myself.
I was going through more of my father’s belongings today in my garage. It took me a while to build up the strength to do it but I figured I had dawdled long enough.
I’m not going to lie – after I was done, I needed a little bourbon to calm my nerves. Widow Jane, the good stuff.
Well, it was bound to happen. I challenged the universe by writing a blog post about injuries you can’t see, and apparently the universe took offense. Thanks to an early morning bike-meets-pylon crash, I now have one that you can see: a separated shoulder.
I’ve been horizontal now most of the day, with some time to ponder, and mostly watch a lot of TV. Tomorrow when I have more energy and maybe less opioid medication flooding my bloodstream, I’ll think about which future posts might annoy the universe. This year especially for me, it is not messing around.
Over the summer, in the midst of the drama with my father’s failing health and faster-failing ability to censor himself, we had a true Sandwich Generation moment. My daughter Sophie, a swimmer who might be expected to experience less head trauma than her friends playing hockey or soccer, suffered a concussion. (Weather bitterness note: it was the end of July and a windy and cold morning; it’s New England, so there isn’t really a reliable season when you can guarantee a warm day.) The chilly wind was blowing the backstroke flags toward the wall, which caused Sophie to miscount her strokes at the finish. Her friend in the next lane had the same problem. However, this friend had her hair underneath her cap in a bun, which protected her when she came in a half-stroke sooner than expected and also bonked her head on the wall.
It’s the same race and pool that are in the picture actually; if I had known what was about to happen, I might have jumped in or tried to cushion the blow against the wall somehow. I know as the parent of a teenager that you are not supposed to protect them from all of life’s hardships. This one would have been an exception though.
The sound from the impact carried across the pool. When Sophie came over shortly afterward and told me that she couldn’t really remember the race, we knew what had happened.
This was a week before summer swim championships and the day we were supposed to leave for Italy. Naively we hoped that it would mild enough to clear before then. Not so. Here I am writing a blog post in the middle of October and it still with her, and with us.
Recovery from a concussion is an agonizing, slow and inconsistent process. It does not move in straight line. And it affects everything. Sophie’s in particular affects her vision and balance. It is hard to focus and hard to see perspectives shift. Concentration is a challenge. Nothing is obviously wrong with you physically; when I used to wear a cast, people knew my arm was broken. Sophie has no such physical manifestation, only a set of things she cannot do for fear of exacerbating the problem.
She is doing physical therapy to help her re-acclimate to the basics. Balance exercises standing in the pool. She lifts one leg, drops the other, first ten times with difficulty, then fifteen times with ease, then fifteen times twice, and so on. Peripheral vision exercises where looks at an object and rotates her head. Sometimes PT in the morning tires her out so much that by mid-day, she is barely hanging on.
A broken arm comes with a prescribed recovery time. A concussion comes with well-meaning guesses. You can take it easy and favor your healthy arm while the damaged one recovers. I’ve done it a few times myself and became a pretty accomplished one-handed stick shift driver, even in San Francisco which combines otherworldly hills with perpetually angry pedestrians who stare disapprovingly from the level ground of the crosswalk you are trying to reach to save your clutch.
With your brain, you cannot do it. It is one day at a time. And I know exactly how she feels.
It is perhaps unfair to compare the trauma of loss and my intense summer to the physical brain trauma from a concussion. I can stand the light, watch television, get through a TV show or a book, stare a screen long enough to bang out a blog post. From that perspective, I have it easy. On the other hand, she almost certainly will recover back to her old state and at age 14, surpass it. I know I cannot go back. The state I once occupied isn’t there anymore. I have to navigate somewhere new.
It is a slow and tortuous process, one in which the world is not slowing down to wait for me. Therapy is not a straight line. Sometimes it energizes me and I can feel progress, but most times, I leave shaking my head wondering how I am going to face the rest of my day. Sometimes I can’t but do anyway. Just like Sophie. Her positive attitude and sense of humor about the situation is an inspiration for days where I can’t find either.
Not often does your teenage daughter tell you something and you really, really get it. Sometimes we play cards together, and after a few games she has to stop because her brain hurts. Sometimes while we play I flash back to playing with my mother at our kitchen table and the cups of coffee we would share early in the morning. It is a reaction not so different from hers. So this time I think I do.
I hope she gets back to where she’s going, and I’m sure she will. I also hope she gets back there before I do. That feeling is part of being a parent, an element dearer to me now that I am no longer a son.
If you’ve been to Whole Foods, you know the virtuous-looking probably-made-from-recycled-material trays for the hot food bar. They come in two sizes: normal, of which there aren’t many, and giant, which is the size most of them are. If you fill them with items from the buffet — although Whole Foods is too snooty to call it that — you would pay about $12 or $18 respectively. They are brown and feel like corrugated paper, and they stick together.
I was fueling up at lunch today when I saw an old man with a cane trying to pull a tray from the “giant” stack. These things are thick and heavy and packed together tightly, so he was struggling. I put down my lunch and went over to help him out. Just a small thing that one does when one sees someone having trouble. Took me 10 seconds. He was grateful, and then I went to stand in line to check out.
Then I almost started to cry.
I used to do 100 things like that a day for my father on the weekends and after a while, I took them for granted. Aside from task lists that I’ve mentioned before, I would perform small acts that were nothing for me and probably saved him so much time and many reminders of his failing abilities. Picking something up off the floor he had just dropped, opening a soda bottle, adjusting the thermostat that I’m sure he couldn’t read anymore. The feeling at Whole Foods brought me back instantly to standing in his old apartment again, as if I’d never left. As if he’d never left.
Recently I have been feeling more myself, but the thing about losing someone is that you really don’t know when something is going to creep up on you like that. Over time, it happens less and less. I guess I am still a long way off.
Recovering is a strange process. You don’t really ever get back to the place you were, and for wherever it is you are going, it is not a straight line. It is hard to know how you’re doing too. I suppose it’s when small things like helping someone out at Whole Foods make you remember, and most of the time, you smile.
In dealing with my father’s things, I’ve found that he has 2 left of value. First is his power recliner, which can get its occupant to a standing position with the touch of a button. The second is his electric scooter. That item was particularly expensive and not hassle-free; when my dad broke his hip in October and spent nearly 2 months away from home, its batteries discharged. Figuring out that was the issue, procuring new batteries and then recycling the old ones was one of those caregivers tasks that (a) doesn’t seem it should take a lot of time, but does, (b) doesn’t feel like caregiving but has to be done anyway and (c) is out of my comfort zone because I am not mechanically inclined. I have a decent sense for when to sell Apple stock, but not that.
I originally had tried to sell these items. It turns out to be harder that you would expect to sell working items in good condition to senior citizens. Maybe this is because Medicare is the competition? Anyway, I don’t really understand it. So I had to shift my mindset and instead decided that I should give these away. And once I decided on that, I hoped that I would find a good home.
I think I did.
The man who will be taking my father’s scooter and chair, the ones that brought him so much happiness, came to me via Jewish Family and Children’s Services. I had listed these items for sale on my Temple’s email list, and that made its way to one of the geriatric care managers who had helped me before. Karen is the one who guided me when my father was incontinent and too stubborn to admit it, which then meant he was about six inches from being evicted from his apartment community. This was two years ago and I had wiped that unpleasant incident from my memory. That’s a blessing in its own way.
His name is Eric (not actually, but let’s call him that). Eric is much younger than my father and had a stroke about two years ago, which left him paralyzed on one side and with many physical and emotional challenges. When people see him now, I’m sure this what they see. It’s like when my father used to be admitted to the hospital and become elderly-male-who-fell-and-probably-has-dementia-and-so-many-other-problems; he was a whole person too and it took special caregivers to see it.
But Eric is a whole person. His wife is amazing. His family loves him. And he is an entrepreneur like my father. He started a business that he worked in for decades. Even now he loves to get around his neighborhood despite the difficulties. Once upon a time he enjoyed a cold beer on occasion. My kind of guy. He works tirelessly in PT and OT to regain and maintain whatever strengths and abilities he can. He does not quit. My father’s kind of guy.
So, I am happy that these items which gave my father so much joy and a perception of increased independence are making their way to a fellow entrepreneur. He would have wanted another human being to have a chance to become more than the sum of his ailments. My father had many flaws, heaven knows — but appreciating what this chair and the scooter did for him was not among them. I suspect Eric, a fellow entrepreneur, is in the same boat.
I did more clean-out of my dad’s stuff today. This afternoon was entitled “Make the Biro Garage Great Again”, otherwise known as reconfiguring where things were, starting to give some things away, and of course, starting to throw things out. Otherwise our cars will never fit in the garage again.
Right now, I am deconstructing much of what my brother, my family and I spent many years pulling together. Today: files easily thrown away. I am leaving the harder stuff for “Future Peter” to deal with. I’ll let him figure out what to do with the photo frames, stamp collections, postcards from friends long gone, old passports and plane tickets, and the presents my children constructed for him . Back in 2013 when he moved here, they made a beautiful little mirror for him. I sat with them that morning and picked the colors. What should I do with that?
With his Bank of America statements and copies of bills marked “Paid”, thank goodness, it is much easier. They go.
I remember the week that Rob and I spent in New Jersey in April of 2011 where I developed a system for him to get the bills paid. Rob focused on clearing stuff out of my parents’ house and I took all things financial. I sat with my father at what had been my mother’s desk. I demonstrated logging into online bill pay, keeping track of statements versus invoices, assuring cash in the account would cover the bills, identifying bills versus statements versus solicitations. I transferred everything onto credit cards that I could. It was a frantic and awful week — and that system worked for years.
This afternoon, I discarded the bulk of the product of it working for years.
There is more of this that awaits me. I also found a clock today that for the past 3 years sat on top of his bedside table. To find that exact clock took me a few tries. Then the one that I’d purchased broke after 6 months or so, but I didn’t realize for quite some time that the difficulty in setting the time and date was the clock, not me. Somewhere in the boxes in my garage is the other clock that he wanted atop the refrigerator. I remember sourcing that one too.
I wonder sometimes if I am cursed because the deconstruction reminds me of the construction. It is the same as a sandwich generation father; I remember the visits to Plaster Fun Time and the times Sophie and Lily worked all day to create artwork just for me. It makes me happy to have experienced that kind of unconditional love, and haunts me a little at the same time.
Creating those folders was my own version of unconditional love. I knew that I had to throw them out regardless. It is just the nature of things.
Before diving into this blog post, I wanted to step outside the blog, so to speak, and write about writing it. Very meta, I know.
My dad passed away about 4 weeks ago. Only now is it really starting to hit me. This makes sense if I step back, which is hard to do when you don’t really feel the ground beneath your feet in the first place. First of all, denial is one of the stages of grief, and true to the cliche, I have been in denial about my father passing away and the impact it’s going to have on me. I’ve also been somewhat in denial about the impact of having been a caregiver, and especially the intensity of last couple of months. There were days that the phone rang 20 times. In a way, you sort of have to be.
Second, truth be told, there is a part of me that wants to stop writing. Just be done grieving and processing and reach the end state, whatever that is going to be. It has to be better than this. As if declaring that I was done would make it so. I am a check the box person and sometimes I like to check the box even if something isn’t 100% complete. However, with processing trauma, it doesn’t work that way. Plus, I still have a few stories left to tell. If anything, they mean more now and I realize that I need to get them out.
Right now, I am in the phase of grieving called “dealing with the stuff”. It is different than when my mom died more than 6 years ago. Back then, my brother and I had to deal with both clearing out the clutter from her life and setting my father up to live his. I don’t have that problem this time. What I do have is all of my father’s things left in the world now in my garage. There is no distance. Every time the garage door opens, there is his scooter, his power lift chair, his desk, his walkers, his dining room table and chairs. Even our outdoor fridge has some of the beer that I used to keep in his old apartment.
But what really grabbed me recently was his robe. That stupid robe that he’s had since well before he moved to Massachusetts in 2013. One of the first things of his that I unpacked was his ugly purple suitcase; my father only had cheap luggage that came courtesy of casinos who in the 1990s gave cheap Made-in-China gifts to him and my mother in their roles as perpetually unlucky medium rollers. I had packed it for him when he checked into the rehab center. I stuffed in multiple pairs of pajamas, pants, shirts, handkerchiefs, his slippers, iPad and case, hearing aids and batteries, his headphones, reading and distance glasses, power supplies, and the framed letter he had received from the Commander of the US Navy Pacific fleet (a whole other blog post). And his robe.
So when I unpacked the robe, I flashed back instantly to how much it had said to me over the years. As a caregiver, you learn to look for signals. When he first arrived, he wore the robe constantly, even to his community’s dinners, which of course you are not supposed to do. I had to save him from that, and insist that he would wear clothes. Then he tried to wear the robe when I visited to prove his independence to me – so I would leave. I think I felt guilty at first and eventually learned not to. My father was a man with whom you had to set strict boundaries.
Over time, he stopped doing this. I would arrive on Sunday afternoons and he would be dressed, and showered, and shaved, and drowning in cologne to cover the smell that he knew his incontinence would create. After a while, I came to appreciate this gesture. For him, putting on a button-down shirt was torture, but he did it anyway. He would ask me if he looked all right. Those were the good days.
Then there would be days when I would arrive and he’d be wearing the robe, and immediately I would know that he wasn’t feeling well. I just knew. If you have cared for an elderly parent before, you know the importance of non-verbal tells, and you know not to give them away.
There were the days that he would wear clothes, and the robe, because it was cold in his apartment. So I’d quietly re-adjust the thermostat.
There were the days that because he wasn’t wearing the robe, I could tell that he’d worn it most of the week by the smell it gave off. My dad would have draped it over the chairs around the kitchen table because hanging it up was too difficult for him. Then I would put it in the laundry when he wasn’t looking and hope he wouldn’t pull it back out.
There was the day in late June, somehow only two months, when I checked him into the hospital. That was the day when everything changed, or at least where the change became obvious to me. I arrived to his apartment to find him in his desk chair wearing that robe and pajamas, with two caregivers on either side of him. They were at their wits’ end. He had refused showers and bathing for days. He had been wearing the same soiled briefs for 3 days. My father was unrecognizable, unshaven, with a dazed look and a barely coherent understanding of where he was and what was happening. His robe told that story too.
There were the final days in his assisted living apartment, which just never worked. I would put him to bed in that robe at 10am because my 9am visits would be over by then – he was just too tired. Then I would cover him with the new cover sheets that fit his new single hospital bed. That never really worked either.
I extracted these memories from just pulling the robe out of that awful purple suitcase. All of this flashed through my mind in about a half second. Maybe less as time loses meaning when one in this state. Like I said, I still have a lot of grieving and work to do.
Back to the meta — I also have a lot of stories left to write. Mostly I am writing that for me. Also I am continuing to write for the many people – which in my world, is like 20 – I’ve spoken to over the past month who have been caregivers, or are caregivers, or know they will be someday. So as with the robe, I am going to keep writing about being a sandwich generation father and son for a while. I hope there are still a few readers left who will follow along.